Support
Support Links
- Rx Laughter Information and message board designed for children to interact and talk about laughter (humor) in relation to coping with a terminal illness.
- EdMarc Hospice for Children Lists services which include home health care, hospice and bereavement support for children with life-threatening illnesses and their families. Contact details, history and links. Located in Chesapeake, Virginia.
- Gifts From Heaven A support group for those who have had or are waiting on liver/small bowel/stomach transplants. Includes pictures and stories.
- Child Health Investment Partnership (CHIP) of Roanoke Valley CHIP promotes the health of medically underserved children within the greater Roanoke Valley by ensuring comprehensive health care, strengthening families, and coordinating community resources.
- EBMommas, a support group for Epidermolysis Bullosa An international support group for patients and families living with Epidermolysis Bullosa.
- Children's Hospital Medical Center of Cincinnati Provides support for patients and families through the Family/Professional Resource Center and other divisions.
- Family Bulletin Board Children's Hospitals and Clinics of Minneapolis / Saint Paul sponsored bulletin board for families of children with chronic or serious conditions.
- Summit Foundation Summit issues grants to families facing pediatric cancer, to get the treatment they need. Summit also funds childhood cancer research. We host many fundraising events as we raise awarness.
- Cycling for Children An independent effort to raise funds for Ronald McDonald House. It's about families helping families of sick children.
- All Better Club - Helping Kids and Families Dedicated to helping children and families cope with hospitalization and chronic illness including kidney disease and transplantation.
- Comfort for Kids program A S.F. Bay Area-based children's home hospice and palliative care program that provides support to critically-ill children as an alternative to hospital-based care.
- KidsDoctor Providing streamlined, comprehensive information about 'what every parent needs to know' when it comes to keeping our kids healthy.
- Willie M Parents Gathering place where family and friends of affected children may openly share information, ideas, frustrations about their experiences with the Willie M program.
- Check Project Located in Erie County Pennsylvania. A countrywide immunization registry, medical home, immunization coalition and outreach.
- George Mark Children's House First children's hospice house in the U.S. providing medical, emotional and practical support to families with children that have life-threatening and terminal illnesses.
- Healthy Futures Free program that provides resources and support for mothers-to-be and children under 2 in northern Michigan.
- Children's Hospice International Gateway for education, referrals and community resources for families coping with children that have catastrophic and terminal illnesses.
- Healing Hearts Grief Center Dallas Healing Hearts supports grief stricken children and families who have experienced the death of a loved one. Includes FAQs, newsletter and contact details.
- Buddy Bear Project A free project for children with a chronic illness.
- BraveKids Resource for support services for children with life-threatening and terminal illnesses.
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