Fanconi
Fanconi Links
- B Positive, Inc. A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas.
- Diamond Blackfan Anemia Also known as hypoplastic anemia and pure red cell aplasia. Information and support for patients and families; DBA registry; donations to further research; and fund-raising.
- Fanconi Anemia Research Fund To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
- Fanconi Anemia: A Handbook for Families and Their Physicians Gives basic information in plain language, about understanding and coping with this serious disorder also known as Fanconi's anemia.
- Fanconi Anaemia A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
- Fanconi Anemia Fact Sheet - University of Pittsburgh Brochure about its diagnosis and treatment published by the University of Pittsburgh Department of Human Genetics, including links to support and diagnosis resources.
- Alex and Matt Pearl Personal stories of two children fighting Fanconi Anemia.
- Diamond-Blackfan Syndrome A definition, epidemiology, clinical features, complications, investigations and management.
- Fanconi Canada Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
- Fanconi Anemia Web An informational site for this disorder.
- Fanconi Anaemia A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area.
- Fanconi Anemia: the Frohnmayer Family's Experience The personal story of David and Lynn Frohnmayer whose three daughters were born with Fanconi anemia, an inherited, usually fatal illness.
- International Fanconi Anemia Registry A study being done on patients with fanconi anemia to obtain clinical and genetic information. Genetic counseling and dietary instruction will be provided.
- Diamond Blackfan Anemia Information and support for patients and families with this type of anemia in the United Kingdom; Details on research, treatments and charitable aims of the group.
- Hope for Henry This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.
- Fanconi Anemia Fact Sheet Information on this disease and who is affected.
- Fanconi Anemia Fact Sheet - Jewish Genetic Diseases Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
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