Cystic Fibrosis

Cystic Fibrosis

• Personal Pages
• Support Groups

Cystic Fibrosis Links

• Cystic Fibrosis Foundation Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy.
  
  
• Hanne´s Personal Danish Cystic Fibrosis Site Personal homepage in Danish with information about Cystic Fibrosis
  
• What is Mucoviscidosis? Popularly known as Cystic fibrosis, it is cause by a defect in a recessive type gene. Learn more about it.
  
• Billycook.com Billy Cook battled cystic fibrosis and died. The site generates funding for patients of this deadly disease.
  
• About TOBI and the Management of Cystic Fibrosis Information on Tobramycin Solution for Inhalation (TOBI) for pseudomonas infection, by pharmaceutical agency.
  
• Corrine's Pride Established in 1998, Corrine's Pride is an annual 5K run to help save the life of a little girl, Corrine Liell. Learn about how you can participate or get involved.
  
• The Breathing Room Guidance about the art of living with cystic fibrosis.
  
• IACFA- International Association of Cystic Fibrosis Adults International association with the purpose of improving the quality of life of all adults with cystic fibrosis, by identifying common problems, enhancing the exchange of information and raising the awareness of the medical profession.
  
• PulmonologyChannel Information on cystic fibrosis.
  
• Cystic Fibrosis I.Q. Test Test what you know about cystic fibrosis.
  
• Celine Supports Cystic Fibrosis Celine lost her niece to CF and has supported the cause since. It is hard to find this kind of information on CF and I think it gives people hope and it is important.
  
• Future Force Future Force - An Irish Publication for the CF Community around the world. If you need more information on CF Future Force has it.
  
• Cystic Fibrosis in the Ukraine
  
• Victoria Chapter, Canadian Cystic Fibrosis Foundation The Victoria Chapter, one of 51 Chapters of the Canadian Cystic Fibrosis Foundation, works to provide a brighter future for every person born with cystic fibrosis. It assists in the quest to find a cure or control for the disease.
  
• Salvay Healthcare Ltd., UK This site has been produced by Solvay Healthcare Ltd., and is designed to be a useful source of information for cystic fibrosis patients, parents, doctors and other carers.
  
• Manual for Cystic Fibrosis Patients and their Families From the European Thematic Network for Cystic Fibrosis. In depth information in PDF.
  
• Richard Shannon Lung Transplant Fund Richard Shannon has Cystic Fibrosis. He is on the list for a lung transplant. A fund raiser is ongoing to pay for expenses beyond what insurance covers. Prayers and contributions are helpful.
  
• Cystic Fibrosis Mutation Data Base The Cystic Fibrosis mutation database.
  
• Cystic Fibrosis Resource Center Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
  
• Sharktank.org Dedicated research for a cure for cystic fibrosis.
  
• Canadian Cystic Fibrosis Foundation Support and resources. Located in Toronto, Ontario.
  
• Curefound.com Research, information and support for cystic fibrosis patients and professionals.
  
• Cystic-L Cystic fibrosis information and support, including a vibrant on-line community, via email, a Handbook of information and resources, photos of CFers, a CF Shop and bookstore.
  
• The Ortho-McNeil CF Care Website The CF Care website provides people with cystic fibrosis, family members, and the CF community with quick and easy access to education, information, and breaking stories on the latest treatments and issues related to cystic fibrosis.
  
• Cystic Fibrosis Genetic Testing
  
• Cystic Fibrosis CF is a chronic, progressive, and frequently fatal genetic disease of the body's mucus glands. An in depth look at this disease by The Daily Apple.
  
• Cyber Campus The Cyber Campus is a computer course aiming to empower and educate people with Cystic Fibrosis. From the Cystic Fibrosis Association of Ireland (CFAI).
  
• Diagnosis and Treatment of Cystic Fibrosis What is this disease and how is it diagnosed? What is currently done to treat it? An article to answer these questions by essortmetn.com.
  
• HealthLink USA A wide rage of helpful Cystic Fibrosis information concerning treatment, prevention, diagnosis, email groups, support groups, personal stories and much more.
  
• Welcome to the I.C.F.M.A. website A not-for-profit organization for increasing cystic fibrosis awareness.
  
• FAQ on Cystic Fibrosis CYSTIC-L Community Page
  
• Cystic Fibrosis Research Center Provides support, information and answers about this disease. CF news, events, links and chat rooms.
  
• Gentiva's Cystic Fibrosis Information Center Gentiva Health Services Cystic Fibrosis Information Center is designed to help you understand cystic fibrosis (CF) and to provide valuable information regarding treatment programs, services and literature.
  
• NHLBI, Facts About Cystic Fibrosis
  
• Cystic Fibrosis Health FactSheet Concise factsheet on causes,symtoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
  
• Help4Cysticfibrosis: Cystic Fibrosis Information Cystic Fibrosis Information Treatments, Symptoms, and Self Help Resources for Coping with Cystic Fibrosis
  
• Yahoo! Health - Cystic Fibrosis
  
• Living with Cystic Fibrosis Living with Cystic Fibrosis in every day life. Also free e-mail.
  
• CF Advantage The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz
  
• CF Network Newsletter For adults with cystic fibrosis. Included past and currant issues, a bulletin board and contact details.
  
• CCFF Sudbury Chapter Website of the Canadian Cystic Fibrosis Foundation Sudbury Chapter. Provides information on local events and information about Cystic Fibrosis.
  
• Cystic Fibrosis Maintained by Dr. James Hu
  
• Cystic Fibrosis Mangement Article detailing therapeutic options for co-management.
  
• Cystic Fibrosis Links Cystic Fibrosis Links and Information
  
• CF PenPals Browse through profiles of those with CF interests... Patients, family members, relatives, doctors etc! Find someone to keep in touch with
  
• Ask NOAH About: Cystic Fibrosis
  
• Cystic Fibrosis Victoria Contains information about CFV (Australia) services, about CF and 65 roses newsletter.
  
• CFTR Review Page A website about CFTR, the protein involved in cystic fibrosis.
  
• Cystic Fibrosis.com Tools, resources, support groups, online resources, news and treatment information.
  
• Boomer Esiason Foundation - Fighting Cystic Fibrosis A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.
  
• Web of Care - Cystic Fibrosis Community Virtual community for home caregivers featuring hundreds of articles, animated caregiving skills demonstrations, and a free "Ask an Expert" service. Connect with other CF caregivers through chat rooms, bulletin boards, free e-mail and free home pages!
  
• Cystic Fibrosis Research Inc. News about CF research. Site also has a newsletter available.
  
• Cystic Fibrosis Info-Zone Directory of links to medical information.