Immune Deficiency Disorders
Immune Deficiency Disorders
Immune Deficiency Disorders Links
- Immune Deficiency Foundation National, non-profit organization to improve the diagnosis and treatment of patients with primary immunodeficiency diseases through research and education.
- Jeffrey Modell Foundation A non-profit research foundation devoted to primary immune deficiency.
- Hope Through Research One family's struggle with Severe Combined Immunodeficiency through 3 generations. Gives good history of the research developments in fighting the disease.
- Chronic Granulomatous Disease (CGD) A wide range of Chronic Granulomatous Disease (CGD) links concerning treatment, prevention, diagnosis, email groups, support groups, personal stories, and much more. Updated regularly.
- X-Linked Agammaglobulinemia Explanation, history, and symptoms, describing this primary immune disease, are presented.
- Natural Health Link Detailed information on immune system, helpful dietary changes and related nutritional supplements and herbs.
- How Stuff Works: Immune System Describes the immune system and discusses related topics such as allergies and AIDS.
- CIPO Home Page Canadian Immunodeficiencies Patient Organization Home Page. Information in English and French.
- The SCID Homepage Information about Severe Combine Immune Deficiency. Includes links to journal articles, latest research developments, and patient support.
- NIH Primary Immunodeficiency Diseases An overview of the primary immunodeficiency diseases, their causes and new therapies, and the prospects for the future when it may become possible to correct the abnormalities and cure these diseases.
- Pediatric Primary Immune Deficiency Diseases associated with congenital and inherited T cell and/or B cell immune deficiency focusing on the pediatric population. Has a listserv for parents to discuss related issues.
- CGD Home Page Chronic granulomatous disease website. CGD is an immune system disorder which affects the phagocytes. The website has information and a message board.
- When the Body's Defenses are Missing--Primary Immunodeficiency Booklet by The National Institute of Child Health and Human Development.
- CVID Common variable immunodeficiency is a disorder characterized by unusual infections and low levels of immunoglobulins. Provides links to useful resources.
- Forest's Omenn Syndrome Descriptions of Omenn Syndrome and the account of one little boy who survived treatment for this rare disorder.
- Primary Immune Deficiency Web Ring Links together pages concerning primary immunodeficiencies.
- Immune System Cure Techniques for supercharging your immune system through diet, stress reduction and nutritional supplements.
- Hyper IgM Homepage Description of the disease Hyper IgM Immunodeficiency, AKA CD40Ligand Deficiency. Useful links and an associated support listserv.
- NORD-National Organization For Rare Disorders Offering discussions, resources, links, and synonyms for many immune deficiencies.
- Primary Immunodeficiency Association British information and support group for primary immunodeficiencies and other disorders of the immune system.
- Cd5 - Cd19 PID Cd5 - Cd19 PID, involves a complete and total lack of response to polysaccharide antibodies and an extremely high expression of Cd5+ B-cells.
- ImmuneDisease.com In-depth information for consumers and healthcare professionals on immunology, primary immune deficiency diseases, and treatment with intravenous immune globulin.
- Kids Health-SCID Provides a detailed discussion of the causes, symptoms, diagnosis, and treatment of severe combined immunodeficiency.
- IPOPI Official site of the International Patient Association for Primary Immunodeficiencies.
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