Post Polio Syndrome
Post Polio Syndrome Links
- Gazette International Networking Institute (GINI) Coordinator of International Polio Network (IPN) and International Ventilator Users Network (IVUN), collects, creates, and disseminates information for people with disabilities, specifically polio survivors and ventilator users. Information includes newsletters, directories, and books about independent living, home mechanical ventilation, and the late effects of poliomyelitis.
- Post-Polio Syndrome Central Search or browse this comprehensive listing of PPS [postpolio, post polio syndrome] internet resources, original papers, surveys and polls.
- Saskatchewan Awareness of Post Polio Inc. Information on polio, post-polio syndrome, diagnosis, treatment, biographies, links to other resources, and equipment for the disabled.
- British Polio Fellowship Information about this British PPS support group. PPS Q&A, publications, library, news and message board.
- Greater Boston Post-Polio Association Support and selected resources for polio survivors now experiencing the effects of post-polio syndrome, plus information on several Massachusetts PPS support groups.
- Post-Polio Resource Group of SE Wisconsin Formed by polio survivors to provide information and support to polio survivors and their families and to educate the medical community and the general public about post-polio syndrome (PPS).
- Post Polio Syndrome Post Polio directory of links to e-mail lists, chat sites, information pages, newsletters, and government information.
- Harvest Center Post-Polio Page Materials about PPS: including articles, audio tapes, the PPS Computerized Assessment Program.
- Post-Polio Network of New South Wales Australia PPS information, Australian Support Groups, Seminars, newsletters, articles and general Australian disability info.
- New Jersey Polio Network Information and news of interest to polio survivors, their families, and the healthcare community. Links, local chapters, newsletter and conference updates, advocacy.
- PPS Related Events, Seminars and Conferences Calendar of non-commercial events concerning post-polio syndrome.
- Post-Polio-Med Email List Forum for researchers, medical professionals, polio survivors, and anyone interested in PPS: for research and treatment issues, conferences, support group meetings, and other related topics.
- Living With Post-Polio Syndrome Medical College of Wisconsin, Living with Post-Polio Syndrome, theories, information and a few links
- Lincolnshire Post-Polio Network An information service for polio survivors and medical professionals. Website offers an expanding online library of currently over one hundred full text articles on post-polio conditions, plus a bi-monthly newsletter and a categorised directory of healthcare resources with descriptions.
- Post Polio Syndrome Forum A web discussion forum for people who have or think they have Post Polio Syndrome. A forum where all are welcome, and to share from a-z pertaining to their PPS. disability.
- Post Polio Syndrome Responses A personal web page with links to Polio/PPS and other Disability Information.
- Why PPS Is So Hard To Understand-Bollenbach 1999 Description of muscle types, muscles indirectly affected by PPS, how PPS differs from ALS, immune vs autoimmune.
- NINDS Post-Polio Syndrome Information Page Post-Polio Syndrome information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- Polio Treatment and Prevention A wide range of helpful Polio information concerning treatment, prevention, diagnosis, email groups, support groups, and personal stories.
- How to Prevent Further Disability In Polio Survivors - Silver 1999 PPS expert lists things to do and not to do.
- PPS Survey A survey for polio survivors with PPS
- Polio-PPS Bookstore Resources Windows to Wisdom Enterprises Bookstore informational section on Post-Polio Syndrome Central directory of Postpolio , post-polio , poliomyelitis , polio resources on the internet.
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