Scleroderma
Scleroderma
Scleroderma Links
- Juvenile Scleroderma Webring Information about joining and open to anyone owning or running a webpage that deals with this disease.
- Scleroderma Community Information including causes, symptoms, treatments and self help.
- Surviving Scleroderma An extensive resource for medical information, overview of disease and news from related organizations. A large service of support to visitors worldwide since 1996.
- Juvenile Scleroderma Resources A parent to parent resource network. Covers exercise, online support, recommended books and personal stories.
- BJ's Story A mom tells her son's story growing up with juvenile scleroderma since the age of 5 years old.
- Scleroderma Society of Canada A non-profit society raising awareness of and funding for research and a cure. Good factual information about this disease.
- Scleroderma from A to Z A major resource for medical and support information, with 200+ pages and 800+ links. Symptoms, treatments, clinical trials, and worldwide support group listings.
- Tamlynn's Story A mom shares her story about her daughter's battle with juvenile scleroderma.
- Scleroderma Basic information about this disease, stories from site visitors, pictures, voting booth and treatments.
- Wind Beneath My Wings A story written by a mom regarding her 18 year old daughter's diffuse scleroderma.
- Scleroderma from About.com News, information, and support for patients with this disorder. Links to other sites.
- Scleroderma Raising awareness about this disorder by providing links to resources and support groups.
- Criseldas Story A personal page from a mom sharing her story about her daughter who has juvenile scleroderma.
- Julie's Page Read about a daughter's struggle with linear scleroderma and find out some of what this family has learned over the years about this illness and its possible treatments.
- The Scleroderma Foundation National nonprofit health organization with 14,000 members, dedicated to a three-fold mission of support, education, and research to help fight this challenging autoimmune disease.
- Page Wise Inc Find out what Scleroderma is, how it is treated, and the search for a cure.
- The Scleroderma Research Foundation Information about the organization, research, mailing list and resources.
- Yahoo Webring Open to families affected by juvenile rheumatic disease such as juvenile scleroderma, lupus, JRA, spondyloarpathy. Instructions on joining.
- Scleroderma Clinical Trials Consortium Information about this international organization which is dedicated to finding a better treatment for this disorder. Includes current studies and a newsletter.
- Scleroderma One person's battle with scleroderma, with information about the disorder.
- Scleroderma Foundation of Victoria Raises awareness of this disorder and offers the aims of the support group.
- I Have Scleroderma Web rings with personal stories of people affected by this disease and links to more information.
- Scleroderma Lung Study A research study into the treatment of pulmonary alveolitis with cyclophosphamide seeking patient volunteers. Brief details of this US study for patients and doctors. (May 2000)
- My Life with Diffuse Scleroderma A 16 year old tells her story about her life with this disease as well as Raynaud's.
- Page Wise An article looking at what scleroderma is as well as some treatment forms.
- Juvenile Scleroderma Network, Inc. Details about this organization who is working to provide educational programs about JSD, and to help children and their families to gain a better understanding of this disease.
- Jemma A mom from the United Kingdom shares her daughter's story fighting juvenile scleroderma.
- Life with Juvenile Scleroderma and Lupus Vanessa, a twelve year old shares her story about having morphea and discoid lupus.
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