Ehlers-Danlos Syndrome
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:Ehlers-Danlos Syndrome
Ehlers-Danlos Syndrome Links
- Canadian Ehlers-Danlos Association Working together to provide assistance, support and resources for people living with this rare genetic disorder.
- Ehlers Danlos Foundation of New Zealand Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
- Arlene Brandeis' Intuitive Art An expression of the loss of family members to genetic anomalies including Ehlers-Danlos Syndrome, Acute Intermittent Porphyria, and Hypolipoproteinemia. Information provided about each.
- Ehlers-Danlos Syndrome Information A brief description of EDS and how it is inherited. Edited by Frederick Matsen III MD Chairman, Department of Orthopaedics, University of Washington, Seattle, USA.
- New York / New Jersey Ehlers-Danlos and Hypermobility Details about this support, message and discussion center. Includes a search feature and posting a message.
- Ehlers-Danlos Syndrome Support Group This site offers extensive information for patients and doctors, plus links.
- EDS Today A bi-annual publication for, by, and about people with Ehlers Danlos Syndrome.
- Damaged - A Journal The personal diary of a young woman learning to live with Ehlers Danlos Syndrome.
- NORD - Ehlers-Danlos Syndrome EDS disease information from the National Organization for Rare Disorders.
- Ehlers-Danlos National Foundation Provides support and information to those affected by Ehlers-Danlos syndrome and their families.
- Ehlers-Danlos Hope Personal plea for help from a sufferer in Syria.
- Page Wise Inc An article about ehlers danlos syndrome with a description, details of where the name came from and brief look at each of the different types.
- Ehlers-Danlos Syndrome - HealthlinkUSA A wide range of helpful Ehlers-danlos Syndrome information concerning treatment, prevention, diagnosis, email groups, support groups, and personal stories.
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