Spinal Muscular Atrophy

Spinal Muscular Atrophy Links

GeneClinics SMA Information Page This page provides a very good overview of SMA, its genetics, clinical presentation and testing. It is written by one of the nation's leading experts in SMA research and genetic testing.
Tori's Buddies Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
Washington University of St. Louis: Neuromuscular Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
Ilsa's SMA Resources A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
SMA2 Ian Paul I am two years old and I have SMA2.
SMA Angels Support Site A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
Families of SMA (Spinal Muscular Atrophy) International support group and resource center for this disease, includes current research.
Families of Spinal Muscular Atrophy Canada Canadian charity supports research into a cure for SMA.
Theo's Story with SMA A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
FightSMA Web site promoting public awareness for spinal muscular atrophy.
Spinal Muscular Atrophy : Theo's story We have lost our son Theo through SMA. This site is bilingual English/French.

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