Tuberous Sclerosis
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:Conditions and Diseases
:Neurological Disorders
:Neurodegenerative Diseases
:Tuberous Sclerosis
Tuberous Sclerosis Links
- Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
- Kolten's Tuberous Sclerosis Page Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
- National Tuberous Sclerosis Association (NTSA) The predominant neurologic manifestations are mental retardation, epileptic seizures and psychiatric and behavioral problems.
- TSCTalk Mailing list and discussion boards for patients and professionals.
- Tuberous Sclerosis A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- Pediatric Database A definition of tuberous sclerosis, followed by the epidemiology, pathogenesis, clinical features, investigations and management.
- National Library of Medicine A list of synonyms, a summary and major features of tuberous sclerosis.
- Marian's Life with Tuberous Sclerosis Marian's story. Information about the disease, pictures, contacts, medicine, links.
- Tuberous Sclerosis - Lisa's Site An incurable genetic condition that causes tumors to grow in various places in the body.
- The Global Tuberous Sclerosis Information Link A free resource dedicated to tuberous sclerosis, ts, tsc, epilepsy and related topics if interest.
- NORD - Tuberous Sclerosis Offers alternative names, a general discussion and further resources.
- Tuberous Sclerosis Association "Supporting sufferers, promoting awareness, and seeking the causes and best possible management of Tuberous Sclerosis." Full of resources and information on Tuberous Sclerosis, plus contact details.
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